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Wear a White Ribbon in March to Raise Awareness of Advance Care Planning

'It’s About How You LIVE,' says National Hospice & Palliative Care Organization

March 8, 2006 - To promote awareness of advance care planning, the National Hospice and Palliative Care Organization is encouraging all Americans to wear a white ribbon in March to increase awareness. Wearing the ribbon is particularly important on March 31, the one-year anniversary of Terri Schiavo’s death, when many people will take time to reflect on end-of-life discussions.

(Read "What is Advanced Care Planning" below news story)

 

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“It doesn’t matter whether you want every medical intervention available up until the day you die, or whether you want to spend the final period of your life receiving what many call ‘comfort care,’” commented J. Donald Schumacher, NHPCO president and CEO. “It should be your decision—one that you share with those you love.”

Healthcare decisions involving care at the end of a person’s life are complicated and, for most people, difficult to think about. An individual’s wishes and preferences for the kind of medical care they would and would not want are very personal and important decisions. Advance care planning lets you decide the kind of healthcare you want at the end of your life—and helps you make your wishes known.

Advance care planning means learning about treatment options and completing an advance directive to express your wishes. Yet, that’s not all.  Another critical piece of advance care planning includes talking about your decisions with your loved ones, healthcare providers, clergy, and others important to you.

People are occasionally confused by the terms associated with advance care planning. An advance directive (sometimes called a living will) lets you explain the care you would want.  An advance directive also includes a healthcare power-of-attorney which enables you to appoint someone to make medical decisions on your behalf should you not be able to speak for yourself. 

Hospice and palliative care providers place the wishes of the patient and family at the center of any care plan and respect the beliefs, traditions and choices of our increasingly diverse nation.  With that in mind, experienced hospice professionals encourage all people to learn more about healthcare options, to ensure that they receive the care that’s important to them.

The advance care planning ribbon was created by NHPCO to help people focus on the message: “It’s About How You LIVE.”  The LIVE message is at the heart of NHPCO’s Caring Connections public engagement campaign encouraging people to “Learn, Implement, Voice, and Engage” in improving care at the end of life. The white awareness ribbon reflects the message of peace long associated with the dove.

More information about advance care planning is available at www.caringinfo.org or by calling the Caring Connections HelpLine at 800-658-8898.

LIVE ribbon lapel pins are available from NHPCO’s Marketplace, www.nhpco.org/marketplace or 800-646-6460.

What is Advance Care Planning?

Advance care planning is making decisions about the care you would want to receive if you happen to become unable to speak for yourself.  These are your decisions to make, regardless of what you choose for your care, and the decisions are based on your personal values, preferences, and discussion with your loved ones.  A part of advance care planning is also communicating your wishes with your loved ones and healthcare providers to provide guidance and comfort to them if something should happen to you.   

Advance care planning includes:

  ● Getting information on the types of life-sustaining treatments that are available.
  ● Deciding what types of treatment you would or would not want should you be diagnosed with a life-limiting illness.
  ● Getting information on how your disease will progress if you have a life-limiting illness.
  ● Discussing with your doctor what your treatments are expected to accomplish and what the risks of these treatments are.
  ● Sharing your personal values with your loved ones. nal values.  Your spiritual values and beliefs make up who you are and may determine which procedures you want – or do not want.
  ● Using advance directives to put into writing what types of treatments you would want if you are no longer able to speak for yourself.  You can download free, state-specific Advance Directives here.

More information about advance care planning is available at www.caringinfo.org or by calling the Caring Connections HelpLine at 800-658-8898.

 

 

 

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