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The inadequate preparation for the death, including delays in seeking and receiving appropriate hospice care can measurably compromise post-loss adjustment, according to the study.

The study was sponsored by the Nathan Cummings Foundation, The John D. Thompson Hospice Institute for Education, Training and Research and the Donaghue Medical Research Foundation. Other co-authors include Holly Prigerson, Stanislav Kasl and Melissa Carlson of Yale; and Rosemary Johnson-Huzerler of the Connecticut Hospice.

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Delaying Hospice Care Can Create Depression Among Survivors

Dec. 9, 2004 - Delaying the decision to place a loved one in hospice care can result in depression for family members after the death of the loved one, says a study by Yale researchers published in the American Journal of Psychiatry.

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Almost One Million Dying Received Hospice Care Last Year: New Record

Nov. 3, 2004 – It was announced today that America set a new record in the number of dying who received hospice care. The announcement, marking the 26th anniversary of National Hospice Month this November by the National Hospice and Palliative Care Organization, said 950,000 received care from the nation’s 3,300 hospice providers in 2003. More... 11/03/04*

 

The study followed over 200 family caregivers from the patient's first enrollment with hospice, through their death, and then for six months after the death. The team studied the impact of hospice use on family well-being after the patient's death.

"We found that shorter hospice enrollment was linked to elevated depression among family caregivers, who are often the spouse or daughter of the deceased," said lead author Elizabeth Bradley, associate professor of public health at Yale School of Medicine.

"The finding is particularly troublesome because nationally the length of hospice enrollment has been declining, with more patients enrolling only in the last week or days of life. This is the first study to examine the impact of that trend on families' well being, and it looks like the impact is significant."

"It is often difficult to discuss, plan for, and then enroll with hospice, especially if the family is not fully aware of and accepting the patient's prognosis," said Emily Cherlin, co-author and research associate at Yale. "But the study reveals the importance of thinking about hospice earlier in the course of an illness.

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